What we’ve achieved
We worked with epilepsy patient and parent representatives as well as educational and clinical experts to develop a policy paper and an advocacy toolkit to help improve the management of prolonged convulsive seizures in schools.
The policy paper makes recommendations for national governments, schools and healthcare professionals. The toolkit is a practical resource for parents to aid them to advocate for better social inclusion, awareness, individualised healthcare plans, national guidance and school policies to support children who have prolonged convulsive seizures.
The toolkit is hosted on the International Bureau for Epilepsy website, and was translated into Italian for dissemination by the Federazione Italiana Epilessie. One of the report’s authors, Professor Olena Shyyan, presented the work at the Association for Teacher Education in Europe conference in October 2017.