What we’ve achieved
In early 2020, the Global Heart Hub established a Heart Valve Disease Patient Council to bring a patient advocacy focus to heart valve disease. It then commissioned HPP to develop a report aiming to raise stakeholder awareness of heart valve disease across Europe.
We brought together a group of experts from across Europe to collaborate in the development of the report, which includes recommendations for action across the entire patient care pathway as well as at specific stages.
The report, Heart valve disease: working together to create a better patient journey, was published in December 2020, along with a visual summary translated into Dutch, French, German, Italian and Spanish. HPP also produced a video in which several of the contributing experts share their perspectives on the importance of working together to improve care for people with heart valve disease.
The launch of the project was supported by a social media campaign using the hashtag #ValvesAtHeart. HPP produced graphics and sample posts for social media, which were made available via the Global Heart Hub website.
In 2021, HPP was commissioned by Heart Valve Voice Canada to adapt the European report and report summary to the Canadian context. We have worked very closely with a Canadian expert advisory group and heart valve disease patients to ensure the report’s recommendations reflected the unique needs of Canadian health services and patients. Data on heart valve disease in Canada remain sparse, and we hope that this project will help to raise awareness and advance research in this area. Both the report and the summary were published in English and French.
In 2023, HPP worked with Initiative Herzklappe to adapt the European report to the German context. This version of the report has been published in German.