What we’ve achieved
Neuroendocrine Cancer UK (NCUK) and The Health Policy Partnership (HPP) collaborated with patients, patient advocates, clinicians and industry representatives to develop an ideal care pathway for people with neuroendocrine cancer in England. The care pathway and associated report are evidence-based and consensus-driven, informed by a rigorous review of the literature, extensive consultation with an expert advisory group and numerous interviews with a range of stakeholders.
Neuroendocrine cancer: an ideal patient care pathway provides clear evidence and recommendations to decision-makers on areas for improvement. It aims to reduce the burden of these cancers in England and to support people with neuroendocrine cancer in seeking the right care, in the right place, at the right time.
NCUK and HPP also jointly organised an event ‘Neuroendocrine cancer: a ready-made solution to put patients first’ at the UK Parliament in June 2023. This event brought together people with lived experience, clinicians and MPs to introduce the widely endorsed care pathway and demonstrate the importance of, and next steps for, integration within NHS England practice. Following the event there will be continued conversations to accelerate the uptake of the care pathway to support earlier diagnosis, help standardise care, reduce the cost burden to the health system, and ensure that people with neuroendocrine cancer benefit from ongoing initiatives to improve cancer care across the UK.