Publications

Developed in collaboration with the International Association for the Study of Lung Cancer (IASLC), this report identifies global opportunities for policy action to improve the lives of people with lung cancer.

Developed for the International Federation of Pharmaceutical Manufacturers & Associations (IFMPA), this report outlines policy recommendations for governments and decision-makers to optimise the implementation of adult immunisation programmes, particularly for the people most at risk.

Mole SE, Gissen P, Nordstrom S, Wait S, Allen L, Antonini M, Brownnutt L, Brown R, Cole B, Gibbon F, Henderson RH, Kenrick S, Sisic Z, Thompson B, Nightingale J. Orphanet Journal of Rare Diseases 2025

This national report identifies key barriers that may be preventing the effective implementation of radioligand therapy in Malaysia, and recommends actions that policy- and decision-makers can take to overcome these challenges.

This national report identifies key barriers that may be preventing the effective implementation of radioligand therapy in Saudi Arabia, and recommends actions that policy- and decision-makers can take to overcome these challenges.

Bayes-Genis A, Anderson L, Harding E, Metra M, Teerlink JR, Januzzi JL, Butler J, Rosano GMC. European Heart Journal, 2025.

Santoni A, Wait S, van Boven JFM, Desson Z, Jenkins C, Khoo EM, Winders T, Yang D, Yorgancioglu A. Advances in Therapy 2025

Morris T, Acevedo K, Alvarez Aldeán J, Fiscus M, Hackell J, Pérez Martin J, Sanchez Luna M, Weil-Olivier C, Tate J. 2025. Discover Health Systems 4(21): 10.1007/s44250-025-00198-7

This discussion paper outlines key considerations and guiding principles for stakeholders to be aware of and adhere to as environmental factors are integrated into the assessment of health interventions, using a care pathway approach.

This national report identifies key barriers that may be preventing the effective implementation of radioligand therapy in Taiwan, and recommends actions that policy- and decision-makers can take to overcome these challenges.

This summary (produced in Polish) identifies key opportunities and the priority actions needed to improve the lives of people with pulmonary arterial hypertension (PAH) around the world.

This national report identifies key barriers that may be preventing the effective implementation of radioligand therapy in the United Arab Emirates, and recommends actions that policy- and decision-makers can take to overcome these challenges.

This national report (produced in Swedish) highlights the challenges faced by people living with HS in Sweden and the policy actions needed to address these challenges.

This national report highlights the challenges faced by people living with HS in Sweden and the policy actions needed to address these challenges.

HPP supported multidisciplinary experts to produce a vision for change in cholesterol management as part of holistic cardiovascular disease prevention in England.

Health systems need to prepare for the adoption of innovative precision medicines. This report includes key performance indicators that can be used by countries looking to improve readiness for radioligand therapy.

Pinto FJ, Harding E, Fenton O. 2024. European Heart Journal ehae455

An implementation framework to help researchers design and run clinical trials that prepare health systems for large-scale implementation of precision care medicine.

This policy brief is part of a set that explores opportunities and provides actionable policy recommendations to make care for metastatic breast cancer more equitable.

This policy brief is part of a set that explores opportunities and provides actionable policy recommendations to make care for metastatic breast cancer more equitable.

This policy brief is part of a set that explores opportunities and provides actionable policy recommendations to make care for metastatic breast cancer more equitable.

This policy brief is part of a set that explores opportunities and provides actionable policy recommendations to make care for metastatic breast cancer more equitable.

Produced for the Lung Cancer Policy Network with expert insights from its members and case studies from a range of locations, this report outlines various approaches to effectively managing individuals with incidental pulmonary nodules (IPNs).

This policy toolkit identifies critical opportunities for decision-makers to leverage, outlining the policy actions needed to improve the lives of people with PAH.

This policy report sets out the policy actions needed to ensure health systems are ready to implement and deliver innovative strategies for RSV prevention in infants.

Carswell O, Tate J, Bechara FG, Bru-Daprés MF, De Goeij S, Gibbons A, Lobo Benito S, Poelman S, Prignano F, Rosenberg A, Smellie C. 2024. British Journal of Dermatology 191(5): 833–834

This national report (produced in Japanese) highlights the challenges faced by people living with HS in Japan and the policy actions needed to address these challenges.

This national report highlights the challenges faced by people living with HS in Italy and the policy actions needed to address these challenges.

This national report (produced in Italian) highlights the challenges faced by people living with HS in Italy and the policy actions needed to address these challenges.

This national report highlights the challenges faced by people living with HS in Denmark and the policy actions needed to address these challenges.

This report identifies four major areas of policy focus in which tangible steps must be taken to help realise an effective approach to managing chronic respiratory diseases.

This report was developed with the Speak Up for COPD coalition to shed light on responses to chronic obstructive pulmonary disease around the world, and to highlight opportunities for policy action and system change.

This report outlines the actions policymakers can take to prepare health systems for the implementation of advanced cancer diagnostics.

This national report highlights the challenges faced by people living with HS in Japan and the policy actions needed to address these challenges.

Produced for the A Million Conversations initiative, this report examines how trust underpins existing inequalities in healthcare and calls on governments, healthcare providers, industry and non-governmental organisations to advocate for and fund organisational change.

This international report (produced in Spanish) highlights the challenges faced by people living with HS, a chronic and painful inflammatory skin condition, and the policy actions needed to address them.

This national report (produced in French) highlights the challenges faced by people living with HS in Canada and the policy actions needed to address these challenges.

This national report highlights the challenges faced by people living with HS in Canada and the policy actions needed to address these challenges.

This national report (produced in Spanish) highlights the challenges faced by people living with HS in Spain and the policy actions needed to address these challenges.

This national report highlights the challenges faced by people living with HS in Spain and the policy actions needed to address these challenges.

This national report (produced in German) highlights the challenges faced by people living with HS in Germany and the policy actions needed to address these challenges.

This national report highlights the challenges faced by people living with HS in Germany and the policy actions needed to address these challenges.

This national report highlights the challenges faced by people living with HS in the UK and the policy actions needed to address these challenges.

Hooper J, Jervis N, Morgan L,  Beckett V, Hand P, Higgs K, Munir A, Prinn J,  Pritchard M, Sarker D, Srirajaskanthan R, Bouvier Ellis C. Journal of Neuroendocrinology 2024 

This international report highlights the challenges faced by people living with HS, a chronic and painful inflammatory skin condition, and the policy actions needed to address them.

Developed in partnership with the International Cardiomyopathy Network (ICoN), this manifesto presents consensus-based objectives and priority actions to mobilise multi-sectoral collaboration and drive change for people with cardiomyopathy and their families.

This report presents practical and evidence-based tools to support the development and implementation of an early detection strategy for lung cancer.

Developed in partnership with Global Heart Hub this roadmap provides patient organisations, patient advocates and healthcare professionals with the knowledge and guidance needed to make shared decision-making a reality for people living with heart valve disease.

Produced for the Lung Cancer Policy Network with insights from its members, this report explores the essential role that care pathways play in delivering best-practice lung cancer care.

This report, co-authored with the European Health Management Association, outlines the principles required for the effective implementation of innovations and highlights how frameworks can be used to help achieve this.

HPP worked with a group of respiratory and allergy specialists, to develop this policy report on severe asthma. The report makes recommendations to ensure that every person with severe asthma receives specialised care appropriate to their specific condition.

HPP collaborated with representatives of nursing organisations to explore some of the major challenges faced by the nursing workforce in the context of an increasing burden of non-communicable diseases.

This report (produced in Spanish) explores how early detection of lung cancer could feasibly be implemented in Latin American countries.

This report (produced in Portuguese) explores how early detection of lung cancer could feasibly be implemented in Latin American countries.

This report (produced in English) explores how early detection of lung cancer could feasibly be implemented in Latin American countries.

This policy brief supports people planning to implement a lung cancer screening programme by focusing on the importance of data management and programme evaluation.

This policy brief supports people planning to implement a lung cancer screening programme by focusing on the importance of developing a clear protocol for LDCT screening.

This policy brief supports people planning to implement a lung cancer screening programme by focusing on the importance of eligibility and recruitment.

This policy brief supports people planning to implement a lung cancer screening programme by focusing on the importance of financial planning.

This policy brief supports people planning to implement a lung cancer screening programme by focusing on the importance of governance.

This policy brief supports people planning to implement a lung cancer screening programme by focusing on workforce and technical capacity requirements.

HPP worked with the European Institute for Innovation through Health Data and leading experts in research, health data and patient advocacy to develop a report on cloud technology in healthcare. The report has been translated into Polish.

HPP worked with the European Institute for Innovation through Health Data and leading experts in research, health data and patient advocacy to develop a report on cloud technology in healthcare.

Lam C.S, Harding E, Bains M, Chin A, Kanumilli N, Petrie M, Pohja-Hutchison P, Yang J, Butler J. BMC Public Health, 2023

HPP produced a policy report exploring the barriers to equitable, diverse and inclusive clinical trials for metastatic breast cancer and highlighting opportunities to improve practice in support of more equitable health outcomes.

HPP collaborated with Neuroendocrine Cancer UK to develop an ideal patient care pathway for people living with neuroendocrine cancer in England.

The Wilson’s Disease Policy Network has launched an action statement calling on stakeholders to improve care for people living with Wilson’s disease.

Tate J, Racoviță M, Cougnard-Gregoire A, , Delcourt C; Harwood C, Trakatelli M. Occupational and Environmental Medicine, 2023

The policy brief outlines six priority areas that must be addressed to ensure everyone living with Wilson’s disease – a rare genetic condition that can cause a range of liver, neurological and psychiatric symptoms – is able to experience a high quality of life.

This position paper calls for a new national strategy built around the prevention mindset to reduce the burden of cardiovascular disease on individuals and society.

This report sets out five policy priorities for improving the prevention and management of RSV in adults across Europe.

Karolay Lorenty, Ed Harding, Olive Fenton. Global Heart, 2023

This discussion paper explores the risk of non-melanoma skin cancer among outdoor workers and the opportunities that exist to better protect them.

The action statement from the Thought Leadership Forum on Cardiovascular Disease project makes recommendations for governments on how to ensure longer and healthier lives for citizens, reduce inequalities, and boost social and economic participation.

The call to action sets out the importance of addressing gaps in treatment and care for people with opioid use disorder.

Racovita M, Wheeler E, Wait S, Albreht T, Baird AM, Jassem J, McNamara A, Novello S, Radu-Loghin C, van Meerbeeck JP. European Journal of Cancer, 2022

A think piece that seeks to address a major knowledge gap by exploring the links between cardiovascular disease and wider societal priorities such as: healthy ageing and economic growth, COVID-19 recovery and health system resilience, and health inequalities.

This think piece examines the lessons that can be learnt from the collection of examples featured in All.Can International’s online efficiency hub, highlighting solutions that have been identified to address some of the most prominent challenges facing cancer care.

This report identifies research priorities around the relationships between physical activity, brain injury and the risk of developing dementia. Developed in collaboration with Alzheimer’s Research UK.

This report highlights the existing wealth of research in implementation of lung cancer screening and is supported by a variety of global case studies.

A think piece which aims to establish a clearer picture of existing strategic responses to cardiovascular disease by national governments.

A framework which can be used to assess health system readiness for, and current integration of, various components of care. It can be adapted for different diagnostics, treatments and monitoring systems.

This report aims to help the heart failure community advocate for change to close the gap between clinical guidelines and the reality of care for people living with heart failure.

Wait S, Alvarez-Rosete A, Osama T, Bancroft D, Cornelissen R, Marušić A, Garrido P, Adamek M, van Meerbeeck J, Snoeckx A, Leleu O, Hult EH, Couraud S, Baldwin DR, JTO Clinical and Research Reports, 2022

A discussion paper offering an overview of the relationship between climate change and healthcare, and recommendations for lowering the carbon footprint of health systems.

A report presenting the ideal patient journey for people with heart valve disease in Canada. Developed in collaboration with Heart Valve Voice Canada.

A discussion paper to initiate the Thought Leadership Forum on Cardiovascular Disease, providing the context and rationale for this work and a public statement of intent.

A report assessing national policy and delivery of care for people with depression in Romania.

A think piece assessing how digital health can help combat the growing burden of non-communicable diseases in the UK.

A resource to help people living with heart valve disease identify opportunities to participate in decisions about their care. Developed in collaboration with the Global Heart Hub.

Racovita M, Wheeler E, Wait S, Bancroft D, Eastabrook R, Albreht T, Baird A-M, Jassem J, McNamara AE, Novello S, Radu-Loghin C, van Meerbeeck JP. Tobacco Prevention and Cessation, 2022

A think piece, co-authored by HPP and seven leading experts, outlining the case for change in European lung cancer policy.

A think piece exploring whether European governments are giving sufficient attention to non-communicable diseases in their post-COVID-19 recovery plans.

Sitges M, Borregaard B, De Paulis R, Nolan P, Woan W, Pearce K, Näumann J, Johnson N, Wait S. European Heart Journal Open, 2021

A report providing a comprehensive summary of the current levels of integration and readiness of radioligand therapy in the US.

A blueprint presenting 13 policy actions necessary to improve the current integration of radioligand therapy in the US and establish an important foundation for all future indications.

A policy brief analysing the effectiveness of various assessment frameworks within cancer care and providing recommendations on how readiness can be defined, evaluated and operationalised.

The UK application of the Radioligand Therapy Assessment Framework, evaluating the extent to which radioligand therapy is currently integrated into UK cancer care.

A report providing a comprehensive summary of the current levels of integration and readiness of radioligand therapy in the UK.

A blueprint presenting 13 policy actions necessary to improve the current integration of radioligand therapy in the UK and establish an important foundation for all future indications.

An Action Statement from the Heart Failure Policy Network including policy recommendations for European institutions to address the growing burden of heart failure.

A report for the Lung Ambition Alliance exploring the public health and economic benefits of implementing targeted lung cancer screening programmes.

A framework to evaluate the current integration of radioligand therapy in different countries and provide evidence to guide health system readiness and integration into care at the national level.

A report exploring gaps and best practice in prevention of recurrent heart attacks and strokes among high-risk groups, focusing on 11 European countries.

A report developed by HPP in partnership with The Health Value Alliance, on behalf of All.Can International, exploring the issues and opportunities in optimising the use of data in cancer care.

A case study on lung cancer screening, developed for the Partnership for Health System Sustainability and Resilience’s global summit in March 2021.

A case study on heart failure, developed for the Partnership for Health System Sustainability and Resilience’s global summit in March 2021.

A report assessing the gaps in care for people with multiple sclerosis across Europe, based on the findings from a survey in 35 countries.

A report from the Heart Failure Policy Network exploring the impact of the COVID-19 pandemic on heart failure care.

A report aiming to raise stakeholder awareness of heart valve disease across Europe.

A pan-European report from the Heart Failure Policy Network, highlighting central leadership and overall performance in terms of major pillars of health services, treatment and care.

A policy toolkit for Fragility Fracture Network members to support the network’s Global Call to Action.

A lay summary of findings from the International Brain Tumour Alliance and Society for Neuro-Oncology survey on how COVID-19 has affected brain tumour patients and carers around the world.

English translation of a report produced by Heart Failure Policy Network and the Institute of Health Sciences of the Catholic University of Portugal, highlighting gaps and presenting specific measures to address the challenge of heart failure in Portugal.

A collaboration between the Heart Failure Policy Network and the Institute of Health Sciences of the Catholic University of Portugal, highlighting gaps and presenting specific measures to address the challenge of heart failure in Portugal. Report in Portuguese.

Merkel C, Whicher CH, Bomnanji J, Herrmann K, Ćwikła J, Jervis N, Wait S, Chiti A. European Journal of Nuclear Medicine and Molecular Imaging, 2020

A policy report on achieving optimal care for women of childbearing age living with chronic diseases.

A think piece exploring areas in which gaps exposed by the COVID-19 pandemic could be addressed to help build more robust health and social care systems.

This toolkit explores the five building blocks of an effective policy response to osteoporosis and fragility fractures, and makes recommendations in a call to action for policymakers.

This report highlights the potential of radioligand therapy as an innovative component of cancer care.

A pan-European policy narrative identifying key challenges in multiple sclerosis care and providing recommendations for how they can be addressed.

This report offers a framework to support policymakers considering how to implement a life-course approach to immunisation.

A report highlighting key policy actions and strategic issues to aid clinical management of non-alcoholic steatohepatitis (NASH) and health-system preparedness.

A report outlining key areas where action is needed to improve access to genetic testing and associated services for people at high risk of BRCA-related breast cancer.

Findings from the international All.Can patient survey

This report, from nine mental health organisations, offers a framework for action to provide a sustained policy response to depression based on several real-world case studies.

Tate J, Teresa Aguado T, De Belie J, Holt D, Karafillakis E, Larson HJ, Nye S, Salisbury D, Votta M, Wait S. Vaccine, 2019

This white paper includes a five-point plan detailing the measures required to ensure radiotherapy is positioned appropriately in cancer care policies and plans.

Oliver K, Gijssels S, Wait S, Boldon S. Eurohealth, 2018

A report from the Heart Failure Policy Network, showcasing examples of best practice and service innovation from across Europe and offering a starting point for policy discussions.

This report identifies barriers to implementation of effective policy to combat viral hepatitis in Indonesia, and makes recommendations for policy priorities.

Harding E. British Journal of Cardiac Nursing, 2018

This report looks at what adopting a life-course approach to vaccination means in practice, and highlights key steps to achieve this.

Kasper B, Lecointe-Artzner E, Wait S, Boldon S, Wilson R, Gronchi A, Valverde C, Eriksson M, Dumont S, Drove N, Kanli A, Wartenberg M. BMC Cancer, 2018

A policy paper to ensure a safe and inclusive education for at-risk children by improving the management of prolonged convulsive seizures in schools.

A policy checklist, setting out key priorities for policymakers.

Wait S. Brain Tumour, 2017

Wait S, Oliver K, Muthu V, Yared W, Albreht T, Khanna D, on behalf of the All.Can initiative. Eurohealth, 2017

Wait S, Han D, Muthu V, Oliver K, Chrostowski S, Florindi F, de Lorenzo F, Gandouet B, Spurrier G, Ryll B, Wierinck L, Szucs T, Hess R, Rosvall-Puplett T, Roediger A, Arora J, Yared W, Hanna S, Steinmann K, Aapro M. Journal of Cancer Policy, 2017

Aapro M, Astier A, Audisio R, Banks I, Bedossa P, Brain E, Cameron D, Casali P, Chiti A, De Mattos-Arruda L, Kelly D, Lacombe D, Nilsson PJ, Piccart M, Poortmans P, Riklund K, Saeter G, Schrappe M, Soffietti R, Travado L, van Poppel H, Wait S, Naredi P. European Journal of Cancer, 2017

A report exploring the challenges that rare diseases present to healthcare systems, outlining clear policy priorities to improve care and treatment options for patients.

Wait S, Kell E, Hamid S, Muljono D, Sollano J, Mohamed R, Shah S, Al-Mahtab M, Abbas Z, Johnston J, Tanwandee T, Wallace J. Lancet Gastroenterol Hepatol, 2016

A global synthesis report identifying key areas of activity in the implementation and measurement of person-centred care.

De Lorenzo F, Wait S, Karaca B, Britten CM, van den Bulcke M; and the European Expert Group on Immuno-Oncology. eCancer, 2015

This report provides concrete proposals on how policymakers across Europe may help to improve patient access to immuno-oncology therapies.

Wait S, Harding E. The European Policy Action Network on Diabetes, 2014

Arzimanoglou A, Wait S, Auvin S, Bahi-Buisson N, Nguyen S. Arch Pediatr, 2014

Raspall-Chaure M, Martínez-Bermejo A, Pantoja-Martínez J, Paredes-Carmona F, Sánchez-Carpintero R, Wait S. An Pediatr (Barc), 2014

Arzimanoglou A, Lagae L, Cross JH, Beghi E, Mifsud J, Bennett C, Schmidt D, Wait S, Harvey G. Eur J Pediatr, 2014

Cross JH, Wait S, Arzimanoglou A, Beghi E, Bennett C, Lagae L, Mifsud J, Schmidt D, Harvey G. Arch Dis Child, 2013

Wait S, Lagae L, Arzimanoglou A, Beghi E, Bennett C, Cross JH, Mifsud J, Schmidt D, Harvey G. European Journal of Paediatric Neurology, 2013

Chen DS, Locarnini S, Wait S, Bae SH, Chen PJ, Fung JY, Kim HS, Lu SN, Sung J, Tanaka J, Wakita T, Ward J, Wallace J; CEVHAP North Asia Workshop on Viral Hepatitis. J Hepatol, 2013