What we’ve achieved
HPP has been working with Global Heart Hub (GHH) to develop resources on heart valve disease since 2020. Most recently, in 2023, we led the drafting of a global, consensus-driven roadmap outlining how patient organisations can advocate for shared decision-making in their countries. This roadmap was based on the consensus of 19 leading experts from around the world who came together at an in-person roundtable event hosted by GHH and HPP.
We hope the roadmap will provide patient organisations and other advocates with the power and guidance to make shared decision-making a reality for all people living with heart valve disease in their countries and settings.
In 2022, GHH commissioned HPP to lead on the research and writing of a patient guide to shared decision-making in heart valve disease. Working with an Advisory Board comprising clinical and patient experts, we drafted a full patient guide and a one-page supporting summary, which people with heart valve disease can print and take with them to medical appointments.
The patient guide is based around key stages in the patient journey, from diagnosis to heart valve repair or replacement. It contains a shared decision-making checklist to help guide conversations with healthcare professionals. This guide seeks to empower people with heart valve disease to express their goals and treatment preferences to their care team. It does not seek to replicate or replace established clinical guidelines for the management of valvular heart disease.