The Heart Failure Policy Network

The Heart Failure Policy Network is an independent, multidisciplinary network working across Europe to raise awareness of the unmet needs of people with heart failure. For more information, visit the HF Policy Network website.

Context

Heart failure is a chronic condition where the heart cannot pump enough blood to support the needs of other organs in the body. 

It is a challenging condition to manage, placing a heavy physical and psychological toll on patients, their carers and families. Despite its significant cost to society, it is largely forgotten, with poor public awareness and understanding.  

Heart failure is the most frequent cause of hospitalisation in people aged over 65, so the effect of an ageing population will make the disease burden even greater. Of people hospitalised with heart failure, one in four is readmitted to hospital within one month, and one in three will die within one year. 

There are at least 26 million adults in Europe living with heart failure. Yet few governments have recognised its strategic significance, and health outcomes for people living with heart failure are unacceptable. 

Heart failure affects one in five people during their lifetime

Two in three heart failure patients are readmitted to hospital within one year of first discharge

%

Hospital admissions due to heart failure are projected to rise by 50% over the next 25 years

What we achieved

HPP acts as secretariat to the Heart Failure Policy Network, which was launched in 2015. We have been instrumental leading the Network’s publications, meetings and political campaigns.

In 2015, Heart Failure Policy Network members and supporters gathered at the European Parliament on World Heart Day (29 September), to launch the Network’s Call to Action and the Heart Failure Policy Toolkit.

In 2016/17, the Network led a European Parliament Written Declaration on Heart Failure (WD 110/2016). Gaining 236 signatures, it was one of the largest ever political campaigns on heart failure. During 2017, the Network published a series of summaries on the state of play in heart failure in 12 countries across Europe.

In 2018, the Network built on its previous work to produce The handbook of multidisciplinary and integrated heart failure care. It is designed to provide an accessible, action-oriented view of best practice, highlighting practical tools and models for change management aimed at patient advocates, healthcare professionals and decision-makers. It showcases examples of service innovation from across Europe and offers a starting point for policy discussions.

The handbook was launched at the European Parliament on 5 September 2018, along with five extended ‘pressure point’ documents published online. A 10-page summary of the report has since been translated into Italian, French and Polish.

To find out more, please see the Heart Failure Policy Network website.

‘HPP has been an essential partner to our efforts to engage decision-makers at the national and European level, bringing clarity, confidence and momentum to the topics at hand.’

Neil Johnson

Chief Executive, Croí, West of Ireland Cardiac Foundation

Key partners and stakeholders

HFPN members:  

Steering Committee 

  • Steven Macari, President of AVEC (France)  
  • Pascal Garel, Secretary General of HOPE 
  • Professor Jose Ramon Gonzalez Juanatey, Cardiologist (Spain) 
  • Penilla Gunther, Member of Parliament (Sweden) 
  • Neil Johnson, Chief Executive, Croí, West of Ireland Cardiac Foundation (Ireland) 

Project Advisory Group: Handbook of multidisciplinary and integrated heart failure care 

  • Professor Anne-Catherine Pouleur, Cardiologist (Belgium) 
  • Yolanda Rueda, representative of CardioAlianza (Spain) 
  • Steven Macari, President of AVEC (France) 
  • Neil Johnson, Chief Executive, Croí, West of Ireland Cardiac Foundation (Ireland) 
  • Paola Antonini, representative of AISC (Italy) 
  • Professor Luc Hittinger, Cardiologist (France) 
  • Dr Josep Comin-Colet, Cardiologist (Spain) 
  • Professor Andrzej Gackowski, Cardiologist (Poland) 
  • Professor Faiez Zannad, Cardiologist (France) 

All members donate their time for free. For full membership details, please see the HF Policy Network website.

In 2015–2017 the HFPN was supported through grants from Novartis Pharma and St Jude Medical (now Abbott). In 2017 and 2018, it was supported through grants from Novartis Pharma.