New policy brief calls for everyone living with metastatic breast cancer to be counted

Advances in treatment mean that people with metastatic breast cancer (MBC) are living longer than ever before. However, many countries still lack robust data on the number of people with the disease and their outcomes, experiences and needs.

As a result, policymakers, healthcare professionals and researchers do not have the evidence they need to understand the true scale of MBC, plan services effectively and improve care.

To mark Metastatic Breast Cancer Awareness Day, The Health Policy Partnership (HPP) is launching The power of data to transform metastatic breast cancer care, a policy brief that sets out the need for stronger data collection. Better data can help ensure that everyone living with the disease is visible in health systems and receives the care they need.

The brief builds on the infographic and advocacy video launched last week, which show why these data matter and how gaps in evidence affect people living with MBC. Together, these resources underscore the need for action to build a more complete understanding of people’s experiences, outcomes and support needs.

To continue the conversation, HPP will host a webinar on Tuesday 20 October, Strengthening metastatic breast cancer data: informing policy, improving care. The virtual event is free to attend and will bring together leading clinicians, researchers and patient advocates to explore the MBC data landscape, discuss the consequences of data gaps and identify practical actions to strengthen data collection and use.

For more information, visit the project page.

Register for the webinar now to secure your place and share your questions in advance.